|
PGP Participant Survey
|
Responses submitted 7/26/2011 19:43:11.
Show responses
|
| Timestamp |
7/26/2011 19:43:11 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. |
chiari malformation |
| Disease/trait: Onset |
Congenital / present at birth |
| Disease/trait: Rarity |
Uncommon |
| Disease/trait: Severity |
Low severity disease |
| Disease/trait: Relative enrollment |
Maybe |
| Disease/trait: Diagnosis |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
United States |
| Paternal grandmother: Country of origin |
Ireland |
| Paternal grandfather: Country of origin |
United States |
| Maternal grandfather: Country of origin |
Germany |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Children] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
Yes |
| Tissue samples from surgery |
Yes |
| Tissue samples from autopsy |
No |
|
PGP Participant Survey
|
Responses submitted 1/3/2012 20:15:01.
Show responses
|
| Timestamp |
1/3/2012 20:15:01 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Ireland |
| Paternal grandmother: Country of origin |
Ireland |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
Germany |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Children] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
No, I have no genetic data. |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
4 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
No |
| Tissue samples from surgery |
No |
| Tissue samples from autopsy |
Yes |
|
PGP Participant Survey
|
Responses submitted 3/23/2012 9:18:54.
Show responses
|
| Timestamp |
3/23/2012 9:18:54 |
| Year of birth |
50-59 years |
| Which statement best describes you? |
I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait |
No |
| Sex/Gender |
Female |
| Race/ethnicity |
White |
| Maternal grandmother: Country of origin |
Ireland |
| Paternal grandmother: Country of origin |
Ireland |
| Paternal grandfather: Country of origin |
Other / don't know / no response |
| Maternal grandfather: Country of origin |
Germany |
| Enrollment of relatives |
Yes |
| Enrollment of older individuals |
No |
| Enrollment of parents |
No |
| Enrolled relatives [Monozygotic / Identical twins] |
0 |
| Enrolled relatives [Parents] |
0 |
| Enrolled relatives [Siblings / Fraternal twins] |
0 |
| Enrolled relatives [Children] |
1 |
| Enrolled relatives [Grandparents] |
0 |
| Enrolled relatives [Grandchildren] |
0 |
| Enrolled relatives [Aunts/Uncles] |
0 |
| Enrolled relatives [Nephews/Nieces] |
0 |
| Enrolled relatives [Half-siblings] |
0 |
| Enrolled relatives [Cousins or more distant] |
0 |
| Enrolled relatives [Not genetically related (e.g. husband/wife)] |
1 |
| Are all your enrolled relatives linked to your PGP profile? |
Yes |
| Have you uploaded genetic data to your PGP participant profile? |
Yes, I have uploaded genetic data |
| Have you used the PGP web interface to record a designated proxy? |
Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? |
Yes |
| Uploaded health records: Update status |
Yes |
| Uploaded health records: Extensiveness |
5 |
| Blood sample |
Yes |
| Saliva sample |
Yes |
| Microbiome samples |
No |
| Tissue samples from surgery |
No |
| Tissue samples from autopsy |
No |
