Public Profile -- huBAA265
Public profile url: https://my-dev.pgp-hms.org/profile/huBAA265
Personal Health Records
Demographic Information
| Date of Birth | 1968-01-20 (57 years old) |
|---|---|
| Gender | Female |
| Weight | 135lbs (61kg) |
| Height | 5ft 1in (154cm) |
| Blood Type | O+ |
| Race | White |
Conditions
| Name | Start Date | End Date |
|---|---|---|
| Abdominal Bloating | 2007-06-01 | |
| Abdominal Pain | 1977-10-01 | |
| Acute Cholecystitis | 2001-03-01 | 2001-03-03 |
| Allergic Drug Reaction | 1994-01-01 | |
| Anxiety | 1999-01-01 | |
| Appendicitis | 2011-07-15 | 2011-07-23 |
| Autoimmune Hemolytic Anemia | 1968-03-01 | 1968-12-31 |
| Bacterial Gastroenteritis | 2007-07-01 | |
| Bradycardia | 2008-01-04 | |
| Coronary Artery Disease (CAD) | 2010-08-01 | |
| DEPRESSION | 1998-01-01 | |
| Difficulty sleeping | 1997-01-01 | |
| dyscalculia | 2007-01-01 | |
| Familial Combined Hyperlipidemia | 1999-01-01 | |
| Fibrocystic Breast Disease | 2002-01-01 | |
| Gastritis | 2007-01-01 | |
| Gastroparesis | 2007-01-01 | |
| Heart murmur | 1968-01-20 | |
| Hiatal Hernia | 2007-07-30 | |
| Hypothyroidism | 1996-09-30 | |
| Kidney stones | 2005-01-01 | |
| Memory loss | 2000-01-01 | |
| Myoclonus | 2008-01-01 | |
| Optic Neuritis | 2002-01-01 | |
| Peripheral Edema | 1994-01-01 | |
| Peripheral Neuropathy | 2007-10-01 | |
| pineal cyst | 2002-01-01 | |
| Polycystic Ovary Syndrome (PCOS) | 1999-01-01 | |
| Porphyria | 1977-01-01 | |
| Ptotic Kidney | 2010-09-01 | |
| Pulmonary Edema | 1994-12-01 | 1994-12-10 |
| Seizure, complex partial | 2007-08-30 | |
| Seizure, Partial (focal) | 2007-08-30 | |
| Upper Airway Resistance Syndrome | 1988-01-01 | |
| Vitamin D Deficiency | 2010-01-01 | |
| Wolff-Parkinson-White (WPW) Syndrome | 1984-01-01 | 2010-10-29 |
Medications (show refills)
| Name | Dosage | Frequency | Start Date | End Date |
|---|---|---|---|---|
| Benadryl | 25 mg Capsule | Take 4, 1 time per day at bedtime | 2007-08-02 | |
| DICYCLOMINE 10MG CAPSULES | 10 mg Capsule | TAKE 1 TO 2 CAPSULES BY MOUTH THREE TIMES DAILY BEFORE A MEAL AS NEEDED | 2010-08-02 | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH EVERY DAY | 2011-07-14 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH EVERY DAY | 2011-05-12 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH EVERY DAY | 2011-04-11 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH DAILY | 2011-04-10 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH DAILY | 2011-03-09 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH DAILY | 2011-02-09 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH DAILY | 2011-01-29 (refill) | |
| FENOFIBRATE 134MG CAPSULES | 134 mg Capsule | TAKE ONE CAPSULE BY MOUTH DAILY | 2010-12-21 (refill) | |
| Fish Oil-Omega-3 Fatty Acids | 1,000-300 mg Capsule | Take 1, 2 times per day | 2010-11-01 | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-11-09 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-10-11 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-10-09 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-09-10 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-08-12 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-08-11 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-07-14 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-06-12 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-05-12 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-04-12 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-03-15 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-03-14 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-02-14 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-02-10 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2011-01-13 (refill) | |
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2010-12-12 (refill) | |
| GABAPENTIN 600MG TABLETS | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2010-09-16 (refill) | ||
| GABAPENTIN 600MG TABLETS | 600 mg Tablet | TAKE 2 TABLETS BY MOUTH THREE TIMES DAILY | 2009-09-15 | |
| HYDROXYZINE HCL 10MG TABLETS | TAKE 1 TO 2 TABLETS BY MOUTH FOUR TIMES DAILY AS NEEDED FOR ITCHING | 2011-10-04 (refill) | ||
| ISOSORBIDE MONONITRATE 30MG ER TABS | TAKE ONE TABLET BY MOUTH DAILY | 2011-11-04 (refill) | ||
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-10-07 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-09-05 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-08-08 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-07-09 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-06-08 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-05-09 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-04-04 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-02-28 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2011-02-01 (refill) | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2010-07-29 | |
| ISOSORBIDE MONONITRATE 30MG ER TABS | 30 mg Tablet Sustained Release 24 hr | TAKE ONE TABLET BY MOUTH DAILY | 2010-11-27 (refill) | |
| JOLIVETTE 0.35MG TABLETS 28'S | 0.35 mg Tablet | TAKE ONE TABLET BY MOUTH DAILY | 2011-11-02 (refill) | |
| JOLIVETTE 0.35MG TABLETS 28'S | 0.35 mg Tablet | TAKE ONE TABLET BY MOUTH DAILY | 2011-10-05 (refill) | |
| JOLIVETTE 0.35MG TABLETS 28'S | 0.35 mg Tablet | TAKE ONE TABLET BY MOUTH DAILY | 2011-09-06 (refill) | |
| JOLIVETTE 0.35MG TABLETS 28'S | 0.35 mg Tablet | TAKE ONE TABLET BY MOUTH DAILY | 2011-09-03 | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-09-13 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-09-12 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-08-05 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-06-29 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-05-12 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-04-12 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE 1 TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-03-09 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE ONE TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-02-09 (refill) | |
| LEVOTHYROXINE 0.100MG (100MCG) TAB | 100 mcg Tablet | TAKE ONE TABLET BY MOUTH EVERY NIGHT AT BEDTIME | 2011-01-05 (refill) | |
| NITROFURANTOIN MONO/MAC 100MG CAPS | 100 mg Capsule | TAKE ONE CAPSULE BY MOUTH TWICE DAILY FOR 10 DAYS | 2010-02-22 (refill) | |
| PRAVASTATIN 40MG TABLETS | 40 mg Tablet | TAKE ONE TABLET BY MOUTH EVERY EVENING | 2010-12-14 | |
| PRAVASTATIN 40MG TABLETS | 40 mg Tablet | TAKE ONE TABLET BY MOUTH EVERY EVENING | 2010-12-14 | |
| Vitamin D-3 | 400 unit Capsule | Take 2, 1 time per day | 2010-09-30 |
Allergies
| Name | Reaction/Severity | Start Date | End Date |
|---|---|---|---|
| Avocado | SEVERE | 1988-01-01 | |
| Cabbage | MILD | 2005-01-01 | |
| Codeine | SEVERE | 1994-01-01 | |
| Oxycodone | SEVERE | 1994-01-01 | |
| OxyContin | SEVERE | 1994-01-01 | |
| Percocet | SEVERE | 1994-01-01 | |
| Percodan | SEVERE | 1994-01-01 |
Procedures
| Name | Date |
|---|---|
| 3 Day Monitored EEG | |
| Abdominal Exploration Surgery | |
| White Blood Cell (WBC) Scan | |
| Barium Swallow X-Ray | |
| Biopsy - Stomach, Open | |
| Upper Endoscopy | |
| Bronchoscopy | |
| C-Section | |
| C-Section | |
| Chest X-Ray | |
| Teeth X-Rays | |
| CT Chest and Abdomen - Without Contrast | |
| CT Lower Extremity - With and Without Contrast | |
| CT Lumbar Spine - With Contrast | |
| Echocardiogram | |
| Electrocardiogram (ECG) - Event Monitor | |
| Electroencephalogram | |
| Pregnancy Ultrasound | |
| Stress Echocardiography | |
| Head MRI | |
| Knee Arthroscopy | |
| Laparoscopic gallbladder removal (cholecystectomy) | |
| Sleep Studies | |
| Mobile EEG | |
| Obstetric Ultrasound | |
| Orbit CT scan | |
| Gallbladder X-Ray | |
| Blood Transfusion | 1968-01-01 |
| Removal of tonsils (tonsillectomy) | 1972-01-01 |
| Tubal Ligation | 1996-09-27 |
| Laparoscopy | 1998-01-01 |
| Gastric Emptying Study - Nuclear | 2007-01-01 |
| Colonoscopy - Flexible, With Biopsy | 2007-01-01 |
| Appendectomy | 2011-07-22 |
Test Results
| Name | Result | Date |
|---|---|---|
| G6PD Screen | Negative | |
| Height | 61 inches | 2009-11-09 |
| Weight | 2160 ounces | 2009-11-09 |
| Sleep Study | No Stage 3 or 4 Sleep. | 2010-10-13 |
Immunizations
| Name | Date |
|---|---|
| Flu Shot | 2010-10-01 |
| Smallpox (Vaccinia) Vaccine | 1972-01-01 |
Updated: 2011-11-10T08:13:49.601Z
Samples
| Saliva Collection Pilot Study for 100 participants |
Sample
51273412
(saliva)
received
2011-10-26 20:30:28 UTC
by Harvard University.
Show log
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Sample
67294834
(saliva)
received
2011-09-13 18:55:47 UTC
by Harvard University.
Show log
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Sample
81868037
(saliva)
received
2011-09-09 19:43:28 UTC
by Harvard University.
Show log
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| Saliva Collection for Multiple Studies |
Sample
71146823
(saliva)
received
2012-01-10 23:59:57 UTC
by Harvard University / TeloMe, Inc..
Show log
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Sample
72772713
(saliva)
received
2012-01-11 00:27:32 UTC
by Harvard University / TeloMe, Inc..
Show log
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| Saliva Re-collection for Multiple Studies |
Sample
92232847
(saliva)
received
2012-05-07 23:10:18 UTC
by Harvard University / TeloMe, Inc..
Show log
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Sample
38797831
(saliva)
received
2012-05-07 23:10:08 UTC
by Harvard University / TeloMe, Inc..
Show log
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Sample
80716095
(saliva)
received
2012-05-07 23:10:27 UTC
by Harvard University / TeloMe, Inc..
Show log
|
Uploaded data
| Date | Data type | Source | Name | Download | Report | |
|---|---|---|---|---|---|---|
| 2011-07-16 | 23andMe | Participant | 23andmedata |
Download
(14.2 MB) |
Geographic Information
| State: | Texas |
| Zip code: | 78660 |
Family Members Enrolled
None added.Surveys
| PGP Participant Survey | Responses submitted 7/16/2011 14:01:50. Show responses |
|---|---|
| Timestamp | 7/16/2011 14:01:50 |
| Year of birth | 40-49 years |
| Which statement best describes you? | I am comfortable making my genome sequence data publicly available without prior review. |
| Severe disease or rare genetic trait | Yes |
| Do you have a severe genetic disease or rare genetic trait? If so, you can add a description for your public profile. | I am chronically ill and believe that I have several conditions that are genetic in origin, however I will complete the remaining questions with my answers relating to the Porphryia. I'm only going to list the disease I consider to be relatively rare below (although I also have hypothyroidism, heart disease, gallbladder disease, fibrocystic breasts, upper airway resistance syndrome, ablated Wolfe-Parkinson-White Syndrome and an ectopic kidney): -Porphyria (probably Erythropoietic protoporphyria or Hereditary Coproporphyria) (undetected by Mt. Sinai genetic study) -Phenol sulfotransferase deficiency --Congential Nonspherical Hemolytic Anemia (in remission) |
| Disease/trait: Onset | 20-29 years of age |
| Disease/trait: Rarity | Very rare/uncommon |
| Disease/trait: Severity | Moderate severity disease |
| Disease/trait: Relative enrollment | No |
| Disease/trait: Diagnosis | No |
| Sex/Gender | Female |
| Race/ethnicity | White |
| Maternal grandmother: Country of origin | United Kingdom |
| Paternal grandmother: Country of origin | France |
| Paternal grandfather: Country of origin | United Kingdom |
| Maternal grandfather: Country of origin | United Kingdom |
| Enrollment of relatives | No |
| Enrollment of older individuals | No |
| Enrollment of parents | No |
| Have you uploaded genetic data to your PGP participant profile? | No, but I have genetic data and plan to upload it |
| Have you used the PGP web interface to record a designated proxy? | Yes |
| Have you uploaded health record data using our Google Health or Microsoft Healthvault interfaces? | Yes |
| Uploaded health records: Update status | Yes |
| Uploaded health records: Extensiveness | 5 |
| Blood sample | Yes |
| Saliva sample | Yes |
| Microbiome samples | Yes |
| Tissue samples from surgery | Yes |
| Tissue samples from autopsy | Yes |
Absolute Pitch Survey [see all responses]
Can tell if notes are in tune: Yes
Can sing a melody on key: Yes
Can recognize musical intervals: Yes
Do you have absolute pitch? Not sure
Enrollment History
| Participant ID: | huBAA265 |
| Account created: | 2009-06-18 07:16:26 UTC |
| Eligibility screening: | 2009-06-18 07:21:56 UTC (passed v1) |
| Exam: | 2009-11-08 17:17:46 UTC (passed v1) |
| Consent: | 2015-08-06 14:06:08 UTC (passed v20150505) |
| Enrolled: | 2010-10-10 16:22:11 UTC |